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All things Efudex (Fluorouracil)

  • By NinaHU Keymaster

    Share your tips, tricks, and challenges for dealing with topical chemotherapy. Connect with others who’ve used Efudex (Fluorouracil) or other topical chemos.

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  • By lauraspec

    I started a 2 week program on my face with efudex and only lasted 12 days. I stopped using it 4 days ago and the sores around my nose are spreading to my cheeks and chin. My mouth broke out in the corners and on the lips and is not spreading down my chin. Is this normal to keep going after treatment has stopped? if so, how long will this continue? I find the only relief I get is putting a polysporin suave with a freezing agent in it but it only lasts approx 30 min….I just want to scratch my face off with the itching and the throbbing…any suggestions?

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    • By NinaHU Keymaster

      Thank you for reaching out, @lauraspec! This sounds similar to what April has tried for her treatments, and I see you already spoke with her. April actually talks here about this phenomena of the skin getting worse, temporarily, after treatment ends here: https://skincancer.net/life-with-skin-cancer/efudex-side-effects-tips/. It’s always good to hear a variety of perspectives, so I will send others here who have had experience with Efudex and see if we can get some answers. Wishing you relief soon! – Nina, SkinCancer.net Team

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  • By DoninAjijic

    62 yo male. 25 years experience with flouricil. Maybe I’m an efudex junkie because I am an Off Label user. Been frozen, scooped and cut and sewn over the years. These days I apply efudex for up to 10 weeks; at this stage i don’t want AK containment I want AK destruction. See my story at doninajijic. Thanks and I wish all users the best outcome possible.

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    • By NinaHU Keymaster

      Thanks for commenting here, @doninajijic. I’m sure as more members join the forum, your experience will be very useful for them. You’re also welcome to submit a story about your experiences on skin cancer generally (it sounds like you have many!) here: https://skincancer.net/stories/. Thanks for being here! – Nina, SkinCancer.net Team

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  • By hollywood59

    My derma has always prescribed me Zyclara or Aldera, an imiquimod. Zyclara is usd 2 weeks on, two weeks off and 2 weeks on. Aldera is used 3 times a week for as much as 16 weeks. Just like Efudex it kills the skin cancer but can spread if the cancer is under the skin and not seen by the nak d eye yet. My family and friends are use to my twice or sometimes 3 times a year scabs on my face. I prefer starting with the cream if able to. I’ve had 5 Mohs surgeries on my face and scalp and it’s not fun. My father died of an aggressive squamous cell on his scalp that couldn’t be controlled and spread to his brain. This is serious stuff. Don’t let anyone tell you otherwise. Good luck everyone!

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    • By NinaHU Keymaster

      Thank you for sharing this, @hollywood59! I’m glad you’ve brought your experience here. It’s good to hear those around you are comfortable with the treatment now, as it can be so isolating. Your comment about your father reminded me of what this community member’s mother went through: https://skincancer.net/stories/squamous-monster/. It is cruel indeed. Looking forward to continuing the conversation as others join in! – Nina, SkinCancer.net Team

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