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Efudex or not???

Just diagnosed with AK and dermatologist prescribed EFUDEX. Usually I go with my doctor's advice but after researching the horrendous side effects from users, I am in a quandry as to whether it is worth all the pain, discomfort, embarrassment, etc. The AK is on my scalp and I worry about sleeping, upset stomach, and all the other known issues. What if I refuse and what would be the consequences? Are there other less drastic measures (I have had the liquid nitrogen which does eventually do the job.) What should I ask my doc when I see him before I start Efudex? Looking for the wisdom and experience of users of this site.

  1. Talk to your doctor about your concerns. I have used 5FU before and think the results are of greater impact than the side effects, especially if it means preventing future cancer.

    I used it on my ears and was able to sleep fine with it but of course everyone has a different body make up.

    Lots of people on this forum have used it too so maybe those can share their experiences or opinions.

    1. you are in charge of your medical care. If you aren’t comfortable with a treatment suggestion, you are entitled to ask for and discuss alternative options. This article includes information on some alternative therapies that I hope will help https://skincancer.net/treatment. Please reach out anytime. Best wishes, Julie (team member)

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