I was diagnosed with amelanotic melanoma of the lower eyelid in January. My EX-dermatologist misdiagnosed me for 13 months. I saw him 7 times about it. Never once did he take pictures, measure, take a patch test…nothing. While I realize it’s rare, I did develop an small ulceration and my lashes were falling out on that lower lid only. It kept growing and I finally insisted on a biopsy not even thinking it was melanoma since it was white. Because of the delay I had 100% of my eyelid removed and 6 surgeries to get the melanoma and build back my eyelid.
Has anyone else experienced a doctor’s delay OR have experienced eyelid melanoma?? I would love to learn about your experience.